Dementia with Lewy bodies
Information to understand the situation and guide support.
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A specific form of dementia
Dementia with Lewy bodies is a type of dementia that can affect thinking, attention and visual perception. It can also affect movement and sleep.
Some people experience marked changes in attention or alertness and visual hallucinations. These symptoms vary between people and require medical assessment.
A list of symptoms or a single test cannot establish the diagnosis. The medical team considers the person's history, the changes others have noticed and any examinations or tests needed to guide diagnosis and treatment.
Accompanying the person and the family
Variations from one moment to another can make it difficult to organise the day. Describe when they appear, how they affect activities, and what helps the person provides useful information for planning support.
Accompaniment can focus on adapted activities, understandable routines and strategies to facilitate autonomy. The needs of the family and carers are also part of the situation.
Ask ADIR which adult neuropsychology services may suit your situation. Psychological or cognitive support is considered alongside medical follow-up and adapted to the person's needs and abilities.
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Frequently asked questions
Does cognitive stimulation cure the disease?
It is not offered as a cure. Activities and support are adapted to the person's abilities and needs alongside their medical care.
What should be explained when asking for information?
Tell us why you are getting in touch, which changes concern you, what medical follow-up is in place and what support the person already receives. This helps guide the next step without assuming a fixed programme.
What should be communicated to the medical team about the medication?
If the person has been diagnosed with dementia with Lewy bodies, tell the medical team prescribing or reviewing treatment. Explain which medicines the person takes and whether they have had any reactions or side effects.
People with this condition can be particularly sensitive to antipsychotic medicines. These can cause severe reactions or worsen movement symptoms. The medical team makes decisions about medication. Speak to the prescriber before changing or stopping it.
Sources: NHS: Treatment and precautions · NINDS: dementia with Lewy bodies. Retrieved on 02-11-2026.
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